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Monday, April 8, 2013

Living with Lupus: How Very Vampiric


Aha! A quick post to share that I've learned the sun can nab me in the shade and through windows. Artificial light is also a culprit. That said, sunscreen is my new friend, outdoors and indoors, around the clock.

Short trips out at night have been the most successful. How very vampiric, right? You can still see spring in the moonlight. 

Approaching 100 days, I'm finding a normal in the slow climb out of the hole. Strangely, as the lupus gradually loses strength, the rheumatoid increases. I find it easier to function with bone pain in a limited way rather than to be knocked completely flat by my entire body. So, I am encouraged.

With difficulty chewing the jaw specialist recommended:



Pretty clever, huh? He also said this is my new normal. Thankfully, much scrumptious food is soft. Just think of giant marshmallows... Anyway, I've been adapting since October 2012, so this isn't new news. And now I have a cookbook to consult.

Hm. Maybe this not chewing is also vampiric. Just staying in style. Here's hoping I bypass the zombie craze. For sure.

I have a few drug potentials in the arsenal, but having had cancer already once, I'm hoping to avoid them. We'll see what must be done. In the meantime, I'm off to simmer soup, sunscreened.

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