Books by Lorie Ann Grover

Books by Lorie Ann Grover
Kirkus Starred Review, Firstborn: "A fantasy that reads like a lost history tome and deftly examines issues of gender...An engrossing story with welcome depths."

Thursday, September 20, 2012

Life with Lupus, Fall 2012


Logo from this blog.

It's been two weeks of a lupus flare, and I thought to post in case it's helpful to another. Of course this only encapsulates my limited experience.

Awakening
The autoimmune disease flare can be awakened by sun exposure. Even with sunscreen, the skin and then internal organs can experience inflammation.

Symptoms
Migraine, flu-like aches, nausea, joint pain, weakness, chills, muscle spasms, rash, darkening of the skin.

Instruction
Bed rest, short walks when able, no sun exposure (including through windows). A general waiting it out. (Medications are limited for me because I've had cancer.)

Low Point
Realizing it can last weeks, months, or years.

Encouragement
Seeing photos online verified it could be so much worse.

What I Miss
Sitting in the sun
Attending Bible Study and Sunday worship
Running to meet friends
Shopping for groceries
Gardening
The gym

What I Gain
Time to read, think, pray, and fill my creative pot. Time to rest.

Lessons Learned 
During the 2 weeks, I've read books and listened to sermons. Here are a few highlights:

* We are not made to be great but to see great. Piper

* The worth and excellency of a soul is to be measured by the object of its love. Scougal

* We look at the dark, tangled threads of a tapestry of history from beneath. From above we will see the dark threads are woven into beauty. Ten Boom

* Cling to God through the painful humbling of his trying you. Remain cheerful and charitable in frustrating circumstances. Packer

* Return to eidetic perception: observing, apprehending, and devouring like a child. Berne

* Test yourself by questioning to see if there is any ulterior motive in an exchange in order to reveal whether you are playing a game. Stop it, if discovered. Berne

Those are the highlights from the time of quiet. All good stuff to mull over no matter the circumstances.

This is the start of week three, and I do believe I feel some improvement. I hope so. Thanks to everyone for the phone calls, visits, flowers, and prayers. I appreciate them! Onward!

3 comments:

Melissa Buell said...

Oh no! I'll be praying for your flare to die down. :( I'm glad that you are able to see light at the end of the tunnel. <3

Little Willow said...

Sending you strength. Beautiful butterfly image.

Janet Wong said...

I love the positive energy in your "What I Gain" list--such a wonderful way to deal with this.